My heart is heavy for a little baby girl Named Brianna who also has Moebius syndrome. Her trach came out and she was without oxygen for over 20 minutes. She is thought to be brain dead at this time but more test will be done. It does not look good for any positive changes. Please keep her and her family in your prayers. She has a Caring Bridge page you may visit to read her story.
God knows her needs better than we do, but i sure would love for her mommy and daddy to experience a miracle from God!
http://www.caringbridge.org/visit/briannabrockner?ref=nl
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