Thursday, January 20, 2011

January 24th is the first ever MOEBIUS SYNDROME AWARENESS DAY! I was born with Moebius Syndrome and Polands Syndrome in 1965 ( I know, I'm getting over the hill) Im so happy to see that we are finally getting some recognition and awareness. I'm very grateful to all the people who made this day possible. The world needs to know we exist and we deserve the funds for research.