Thursday, November 18, 2010

I just love the idea of popping popcorn in a christmas ball. Fun for the kids and the big kids. Check out this link
http://www.kckpl.lib.ks.us/ys/crafts/BALL.HTM

Saturday, November 6, 2010

Moebius syndrome

I was born with Moebius syndrome and Polands syndrome. Thanks to the internet and finding other people with Moebius and Polands on facebook, I am finally better understanding both of my disorders. I have always had questions that could never be answered because these disorders are extremely rare. Its a long story that I would like to share with my family and friends especially my new Moebius friends who can clearly relate to my life experiences. So check back often to see if i get myself together and start telling my story. It has been a long rough road but it was a journey well worth taking!

Prayin for Little Brianna

My heart is heavy for a little baby girl Named Brianna who also has Moebius syndrome. Her trach came out and she was without oxygen for over 20 minutes. She is thought to be brain dead at this time but more test will be done. It does not look good for any positive changes. Please keep her and her family in your prayers. She has a Caring Bridge page you may visit to read her story.
God knows her needs better than we do, but i sure would love for her mommy and daddy to experience a miracle from God!
http://www.caringbridge.org/visit/briannabrockner?ref=nl